Bright and early this morning Karl went in for in for a Cardio/Nuclear Stress Test. This was ordered by his cardiologist to see if his heart and body are ready for exercise at cardio rehab.
The cardiac stress test is done with heart stimulation, either by exercise or with intravenous pharmacological stimulation, with the patient connected to an electrocardiogram (or ECG). Karl is going the IV route, along with having "myocardial perfusion imaging." A radiotracer is injected during the test. After a suitable waiting period to ensure proper distribution of the radiotracer, photos are taken with a gamma camera to capture images of the blood flow. Photos taken before and after exercise are examined to assess the state of the coronary arteries of the patient. By reviewing the amounts of radioisotope within the heart muscle, the test identify regional areas of reduced blood flow, if any.
On another note, Karl had a nice visit with his brothers the past week, and they have been helpful with projects like cutting hedges, plumbing, errands, allowing Penny to take some time out with the girls and just surrounding Karl with love. Keith will still be in town for another few days. Karl continues to walk without his walker and is ready to get moving with more therapy. He has enjoyed all the cards, calls and visits from friends. Thanks to everyone for the continued support!
Wednesday, July 31, 2013
Sunday, July 21, 2013
July 21: Strong Steps
The first part of this post is for you, the readers- Karl's family and friends- and also the friends of his family and friends. I am still hearing many of your stories about following the journey here on the blog. Even from those who have never met Karl but have a close relationship with someone in his life. His story is one that makes you stop and think. Think about your life, your spouse, children, grandchildren, parents...makes you think about how you are living your life and what really matters. Thank you all for being a part of this with our family. Just by following along and wishing for the best, you helped, and hopefully Karl's story has caused to you hold a loved one just a little closer.
Now that Karl is home and getting back to a more normal life, many of you have been able to visit or at least speak with him on the phone. It's wonderful to see these connections once again. The love and support that poured over Karl while he was in the hospital can now truly be appreciated by him.
This post also comes with a report of one more milestone. Today Karl went "walker free." He made the choice this morning that the walker was more in the way than anything, and moved about the house and backyard all on his own! He even got on the grill for the first time. Karl moved very well, said he felt good and seemed to be quite stable. It was hard to believe just weeks ago he was still struggling to stand. Imagine where he will be in a month! Way to go!
More great news is that Kenton and Keith have made the trip from Kansas City and Wichita to visit their big bro. You can just see how happy he is to have them here. The next 2 weeks will be a special time for all of them.
Karl will soon begin Cardio-rehab at the Memorial Hospital Gym, 3 times a week. This is monitored exercise and education on how to get slowly and safely back into a work-out routine. He look forward to seeing what the program will offer.
Now that Karl is home and getting back to a more normal life, many of you have been able to visit or at least speak with him on the phone. It's wonderful to see these connections once again. The love and support that poured over Karl while he was in the hospital can now truly be appreciated by him.
This post also comes with a report of one more milestone. Today Karl went "walker free." He made the choice this morning that the walker was more in the way than anything, and moved about the house and backyard all on his own! He even got on the grill for the first time. Karl moved very well, said he felt good and seemed to be quite stable. It was hard to believe just weeks ago he was still struggling to stand. Imagine where he will be in a month! Way to go!
More great news is that Kenton and Keith have made the trip from Kansas City and Wichita to visit their big bro. You can just see how happy he is to have them here. The next 2 weeks will be a special time for all of them.
Karl will soon begin Cardio-rehab at the Memorial Hospital Gym, 3 times a week. This is monitored exercise and education on how to get slowly and safely back into a work-out routine. He look forward to seeing what the program will offer.
Sunday, July 14, 2013
July 14: Enjoying Life at Home
Karl has been home for almost a week now and he couldn't be happier! It didn't take long to get settled back in and enjoy the comforts of home. Karl says he loves sleeping in his bed and having his wife right next to him once again. He feels like he was never gone.
The past week was filled with appointments, scheduling home health visits and working out the new routine. Penny and Karl are focused on resting, eating healthy and spending time together. We have to remember that although life is somewhat "back to normal," our guy has months of healing still ahead.
Karl's family in the mid-west will be headed down to visit over the summer so we have something wonderful to look forward to!
Even though several days have passed - we are just as grateful to have Karl back home as we were the day he was discharged. Happy 6th day home, Dad. We love you!
The past week was filled with appointments, scheduling home health visits and working out the new routine. Penny and Karl are focused on resting, eating healthy and spending time together. We have to remember that although life is somewhat "back to normal," our guy has months of healing still ahead.
Karl's family in the mid-west will be headed down to visit over the summer so we have something wonderful to look forward to!
Even though several days have passed - we are just as grateful to have Karl back home as we were the day he was discharged. Happy 6th day home, Dad. We love you!
Tuesday, July 9, 2013
July 9th: HOME SWEET HOME!
We have celebrated many small victories together over the past 6 weeks - and now we can celebrate one BIG one. Today, Karl was discharged from the hospital! Hooray! This is a very momentous day.
The journey has certainly not come to an end, but the tale of being stuck in a room with constant interruption, new faces, no privacy and few comforts is over. Karl is now home and will continue the recovery process in a world with more comfort and convenience.
Penny brought home the love of her life to once again join her in their day to day routine. To say they will treasure the coming days together is an understatement. Karl's children and family are beside themselves with happiness and relief. We are so blessed to have more time with the wonderful man we all love so dearly.
The journey has certainly not come to an end, but the tale of being stuck in a room with constant interruption, new faces, no privacy and few comforts is over. Karl is now home and will continue the recovery process in a world with more comfort and convenience.
Penny brought home the love of her life to once again join her in their day to day routine. To say they will treasure the coming days together is an understatement. Karl's children and family are beside themselves with happiness and relief. We are so blessed to have more time with the wonderful man we all love so dearly.
Monday, July 8, 2013
July 5th and 6th: Another Visit to the Castle
Friday was business as usual with the therapy team. Karl worked with each therapist on different aspects of the mind and body. It's fascinating to see them interact. They love working with Karl and he appreciates all their efforts.
We begged the doctor to give us another day at home with Karl and our wish was granted. This time we had approx 11:30am - 8:00pm on Saturday. During this visit home Karl, was able to be in his home office and check up on what he had been missing. He was able to feel like things were going to be normal again. He even got on the computer for a few minutes!
We had a contractor come by and make parts of the house more stable and safe for Karl. Tightening up the railings and adding grab bars in the shower. Karl was able to slowly go up and down the stairs to give his input! He is still using the walker, but moving around fairly well. It's only a matter of time before his legs get stronger and his movements become more fluid. He's doing incredible so far. A day away from the therapy gym but Karl was still getting in lots of exercise!
Our family was able to share another meal together, and enjoyed some delicious food from dear friends and neighbors. :)
Another long and busy day took a lot out of Karl. We were reminded that the healing process needs to be filled with rest. We are so excited to get our guy back and have our normal lives again, but the #1 focus will be taking it easy. In time we can do more and more, but for now, slow and steady is the way.
We begged the doctor to give us another day at home with Karl and our wish was granted. This time we had approx 11:30am - 8:00pm on Saturday. During this visit home Karl, was able to be in his home office and check up on what he had been missing. He was able to feel like things were going to be normal again. He even got on the computer for a few minutes!
We had a contractor come by and make parts of the house more stable and safe for Karl. Tightening up the railings and adding grab bars in the shower. Karl was able to slowly go up and down the stairs to give his input! He is still using the walker, but moving around fairly well. It's only a matter of time before his legs get stronger and his movements become more fluid. He's doing incredible so far. A day away from the therapy gym but Karl was still getting in lots of exercise!
Our family was able to share another meal together, and enjoyed some delicious food from dear friends and neighbors. :)
Another long and busy day took a lot out of Karl. We were reminded that the healing process needs to be filled with rest. We are so excited to get our guy back and have our normal lives again, but the #1 focus will be taking it easy. In time we can do more and more, but for now, slow and steady is the way.
July 4th: What a Celebration We Had!!!
This year we had an extra special July 4th celebration! We got to celebrate our family all being together in our home.
The doctor allowed us a short day pass to bring Karl home to Tyler Street from approx. 3pm - 9pm. We almost didn't get to go due to having difficulty stopping a small cut form bleeding. The blood thinners Karl is on make clotting a challenge (which is good inside, but not outside the body,) so we were delayed a bit. So happy when we got the clot and clearance to bust him out!
Penny had prepared a special heart healthy meal for us all to share and we spent the evening talking, laughing and taking in this special moment we had been waiting 6 weeks for. Karl has not been home since May 26th. He relaxed on the couch and loved every minute of being in his house again. As you can imagine, the evening was very emotional.
The day took a lot out of Karl and we got him back to the quiet of his little room at Memorial South around 9pm. He got a good night's sleep- and a taste of what life will be like when he's back.
On behalf of Karl, I want to thank all of you who sent emails, videos, pictures and stories to share with Karl. The video was awesome. We all laughed and cried together- there was no doubt Karl felt the love. And he appreciated it so very, very much.
The doctor allowed us a short day pass to bring Karl home to Tyler Street from approx. 3pm - 9pm. We almost didn't get to go due to having difficulty stopping a small cut form bleeding. The blood thinners Karl is on make clotting a challenge (which is good inside, but not outside the body,) so we were delayed a bit. So happy when we got the clot and clearance to bust him out!
Penny had prepared a special heart healthy meal for us all to share and we spent the evening talking, laughing and taking in this special moment we had been waiting 6 weeks for. Karl has not been home since May 26th. He relaxed on the couch and loved every minute of being in his house again. As you can imagine, the evening was very emotional.
The day took a lot out of Karl and we got him back to the quiet of his little room at Memorial South around 9pm. He got a good night's sleep- and a taste of what life will be like when he's back.
On behalf of Karl, I want to thank all of you who sent emails, videos, pictures and stories to share with Karl. The video was awesome. We all laughed and cried together- there was no doubt Karl felt the love. And he appreciated it so very, very much.
Tuesday, July 2, 2013
July 2: A Great Report from the Doctors
Each Tuesday the medical staff meets with rehab patients to review progress, answer questions and set goals. Today's meeting was a good one.
Karl has already exceeded the team's expectations and impressed the doctor "who is never wrong on his predictions." The physical therapist mentioned she has had to change her plan for Karl 2 times already because he is doing so well. I guess they are all finally realizing what we already knew about sweet Karl- he is EXCEPTIONAL! And he gives 100% to anything important in his life. Go Karl!!!!
Due to his improvements and his current state, Karl was given a "day pass," as they call them, to come HOME for a few hours on July 4th and be with his family. Oh boy were we happy to hear this!! And you can bet this made Karl's day. He was overwhelmed with happiness to have a chance to spend some time in his own house. Right now, it's little things like this that really matter and help you move forward.
There is a good possibility that Karl will be going home for good in less than 2 weeks. Everything will be determined in time. We don't want to get ahead of ourselves but this is so encouraging and another piece of hope and motivation for or awesome Karl. :)
Karl has already exceeded the team's expectations and impressed the doctor "who is never wrong on his predictions." The physical therapist mentioned she has had to change her plan for Karl 2 times already because he is doing so well. I guess they are all finally realizing what we already knew about sweet Karl- he is EXCEPTIONAL! And he gives 100% to anything important in his life. Go Karl!!!!
Due to his improvements and his current state, Karl was given a "day pass," as they call them, to come HOME for a few hours on July 4th and be with his family. Oh boy were we happy to hear this!! And you can bet this made Karl's day. He was overwhelmed with happiness to have a chance to spend some time in his own house. Right now, it's little things like this that really matter and help you move forward.
There is a good possibility that Karl will be going home for good in less than 2 weeks. Everything will be determined in time. We don't want to get ahead of ourselves but this is so encouraging and another piece of hope and motivation for or awesome Karl. :)
Sunday, June 30, 2013
June 30: Moving Along
It's been a few days since I have posted- and I know many of you check in everyday - so my apologies for keeping you waiting.
When I first started writing, this blog was not only a way to keep family and friends in the loop on Karl's situation, but it also become an outlet for me to think through what was going on and try and make some sense of everything. Fortunately, Karl really is doing better, and there have not been any scary medical emergencies to inform you of, so I have not been posting as much.
Today, I am happy to report that Karl continues to move forward with his rehabilitation. The intense therapy sessions have helped him become more and more self sufficient in his day to day actions. His sessions are normally 1.5 - 3 hours at a time, and vary between physical, occupational and speech therapy. He works often on improving small motor skills. Karl's positive attitude and determination to get home and back to normalcy is truly inspiring. There is still a lot of work to be done, but Karl is up for it, and has much to look forward to down the road.
At this point, Karl is open to having visitors. His therapy schedules are different each day, and sometimes can wear him out, so it's best to call Penny and work out a time to stop by if you have the desire to visit. Karl is on the 5th floor at the Memorial Regional Hospital South.
REMINDER: Keep sending me those videos! I have received several and they are very sweet/funny/entertaining. Thanks to those who have emailed me your clips already. :)
Thursday, June 27, 2013
Friends and family, I need your help! Send me Video Messages for Karl
__
I am putting together a collection of videos to show Karl on July 4th. Trying to make something special for the holiday, and what could be better than love and well wishes from all of you!!
My request to you:
Send some words of encouragement to share with Karl.
What to do:
1. Record a video with your cell phone or camera
2. Text or email it to me at katie.osterhout14@gmail.com by July 2nd.
3. Be sure to say who you are in the video.
If you want to send me several- bring them on!! The more the merrier. Karl will love watching these.
Ideas:
- Tell Karl what you look forward to doing together when he's out of rehab.
- If you live in a big city or out in the country, take a video of your garden or a local monument and tell him about it. Anything to stimulate and intrigue. He will be interested in your lives too!
- Musically inclined? Sing a song or make up words for him. He still loves to laugh :)
- Tell us about a memory you have shared with Karl
- Tell a joke
- Make a funny face
- Cry. Laugh. Show us how you are feeling.
- Blow him kisses.
- Make a video with a big group or just you alone. (Chamber crew?)
- Read a poem to Karl.
- Tell Karl a story.
Be sure to speak LOUD and CLEAR so we can hear you. Get friends or your children to help. Just a few minutes of your day will mean the world to Karl.
Even our dogs are going to send him a video ;)
Thank you all in advance for participating! I will post the final video for all to see.
I am putting together a collection of videos to show Karl on July 4th. Trying to make something special for the holiday, and what could be better than love and well wishes from all of you!!
My request to you:
Send some words of encouragement to share with Karl.
What to do:
1. Record a video with your cell phone or camera
2. Text or email it to me at katie.osterhout14@gmail.com by July 2nd.
3. Be sure to say who you are in the video.
If you want to send me several- bring them on!! The more the merrier. Karl will love watching these.
Ideas:
- Tell Karl what you look forward to doing together when he's out of rehab.
- If you live in a big city or out in the country, take a video of your garden or a local monument and tell him about it. Anything to stimulate and intrigue. He will be interested in your lives too!
- Musically inclined? Sing a song or make up words for him. He still loves to laugh :)
- Tell us about a memory you have shared with Karl
- Tell a joke
- Make a funny face
- Cry. Laugh. Show us how you are feeling.
- Blow him kisses.
- Make a video with a big group or just you alone. (Chamber crew?)
- Read a poem to Karl.
- Tell Karl a story.
Be sure to speak LOUD and CLEAR so we can hear you. Get friends or your children to help. Just a few minutes of your day will mean the world to Karl.
Even our dogs are going to send him a video ;)
Thank you all in advance for participating! I will post the final video for all to see.
Wednesday, June 26, 2013
June 24, 25, 26: Making Big Strides
No one ever doubted Karl's will to get better. We all knew he would do everything in his power to get back to the life he loves so much. And now he has a real opportunity to do just that.
The Memorial rehab facility has already proven to be instrumental in Karl's physical recovery. The past 3 days have been full of to getting back some independence for our guy. Below is a short list of milestone's Karl has accomplished this week.
Monday:
Karl was able to get around by walking his feel in the wheel chair - showing strength in his legs! Did some work practicing the mechanics of walking and got about 3 feet.
- Longest period sitting up in a wheel chair
- Got to HUG me while standing up (this was the best- a real hug!!)
- Sitting outside in the fresh air!!
- Ate a cookie :)
Tuesday
- Walking down the hall with a walker!!
- Increased movement in right hand
Tuesday morning the team of doctors met to assess Karl's long term plan. We are expecting another 2-3 weeks in rehab for now. Will assess again next week. There are still lots of unknowns in the relm of nerological progress.
Wednesday
- Working on walking up STAIRS!!
- Eating meals with limited assistance, using special utensil "guides" (and appetite is back!)
- Walking better with the walker, all the way to rehab room
- Standing with no assistance
- Sitting in a real chair
- Practicing getting in and out of a car
- Math problems (these were tricky, but easier the second time)
We did run into a few concerns with staff and made sure to speak with every person in charge to make it right. Karl deserves the best care there is to be had.
This week has been the most successful and positive since Karl's trip to the hospital. It's apparent that seeing his progress, and being able to do more on his own has brought happiness to Karl. The past few days have also brought relief and joy to our family. Seeing Karl finally move forward is all we ever wanted. He's ready to get home and working HARD at it!
The Memorial rehab facility has already proven to be instrumental in Karl's physical recovery. The past 3 days have been full of to getting back some independence for our guy. Below is a short list of milestone's Karl has accomplished this week.
Monday:
Karl was able to get around by walking his feel in the wheel chair - showing strength in his legs! Did some work practicing the mechanics of walking and got about 3 feet.
- Longest period sitting up in a wheel chair
- Got to HUG me while standing up (this was the best- a real hug!!)
- Sitting outside in the fresh air!!
- Ate a cookie :)
Tuesday
- Walking down the hall with a walker!!
- Increased movement in right hand
Tuesday morning the team of doctors met to assess Karl's long term plan. We are expecting another 2-3 weeks in rehab for now. Will assess again next week. There are still lots of unknowns in the relm of nerological progress.
Wednesday
- Working on walking up STAIRS!!
- Eating meals with limited assistance, using special utensil "guides" (and appetite is back!)
- Walking better with the walker, all the way to rehab room
- Standing with no assistance
- Sitting in a real chair
- Practicing getting in and out of a car
- Math problems (these were tricky, but easier the second time)
We did run into a few concerns with staff and made sure to speak with every person in charge to make it right. Karl deserves the best care there is to be had.
This week has been the most successful and positive since Karl's trip to the hospital. It's apparent that seeing his progress, and being able to do more on his own has brought happiness to Karl. The past few days have also brought relief and joy to our family. Seeing Karl finally move forward is all we ever wanted. He's ready to get home and working HARD at it!
Sunday, June 23, 2013
June 23: Rehab, here comes Karl ....(again!)
Sunday
Karl did not have the best night's rest and was pretty sore when we got to him today. Tried to slowly ease into the day and help make him comfortable. Still sore from swelling in feet and hands.
On a positive note, we were all happy to see Karl was officially taken off oxygen this morning! He was able to maintain a high enough blood oxygen level on his own so they did away with the cannula. This gave Karl a bit more freedom, as the oxygen was hooked up to the wall. Katie took Karl on a little trip around the cardiac floor in his recliner chair. He was able to really see the different spaces he was in the past few weeks, and just have the chance to get the heck out of that same room! Change of scenery.
No PT today but we had Karl moving around quite a bit. His swelling had gone down some by the afternoon which allowed him to move more comfortably.
We finally received the great news -- news that lifted Karl's spirits immensely -- he would be able to move back to rehab today! Karl is eager to start working hard to get better and this was what he was waiting for. We are all so thrilled we see him get out of the main hospital.
Transport came around 6pm to move Karl back to Memorial South. He was settled into his room on the 5th floor and we did some decorating with all the family photos and posters from the grandchildren. After helping Karl get comfortable and making sure the nurses knew his limitations/needs (and we make it CLEAR) it was time to say goodnight. We left seeing Karl in what might have been the best shape he's been in yet.
This whole journey begin ONE MONTH ago today. It does't seem possible that it's been going on this long. Karl has been through so much, and survived so much, that it's finally got to be his time to take steps forward. I know we will all continue to cheer him on while he moves into the next chapter- ready to go!
{If anyone would like our address to send a card- please email me at katie.osterhout14@gmail.com and I will be happy to pass that along}
Karl did not have the best night's rest and was pretty sore when we got to him today. Tried to slowly ease into the day and help make him comfortable. Still sore from swelling in feet and hands.
On a positive note, we were all happy to see Karl was officially taken off oxygen this morning! He was able to maintain a high enough blood oxygen level on his own so they did away with the cannula. This gave Karl a bit more freedom, as the oxygen was hooked up to the wall. Katie took Karl on a little trip around the cardiac floor in his recliner chair. He was able to really see the different spaces he was in the past few weeks, and just have the chance to get the heck out of that same room! Change of scenery.
No PT today but we had Karl moving around quite a bit. His swelling had gone down some by the afternoon which allowed him to move more comfortably.
We finally received the great news -- news that lifted Karl's spirits immensely -- he would be able to move back to rehab today! Karl is eager to start working hard to get better and this was what he was waiting for. We are all so thrilled we see him get out of the main hospital.
Transport came around 6pm to move Karl back to Memorial South. He was settled into his room on the 5th floor and we did some decorating with all the family photos and posters from the grandchildren. After helping Karl get comfortable and making sure the nurses knew his limitations/needs (and we make it CLEAR) it was time to say goodnight. We left seeing Karl in what might have been the best shape he's been in yet.
This whole journey begin ONE MONTH ago today. It does't seem possible that it's been going on this long. Karl has been through so much, and survived so much, that it's finally got to be his time to take steps forward. I know we will all continue to cheer him on while he moves into the next chapter- ready to go!
{If anyone would like our address to send a card- please email me at katie.osterhout14@gmail.com and I will be happy to pass that along}
June 22: Healing is a process
Saturday was another day to heal.
Karl has been battling edema the past day or so- especially in the left hand/arm. To try and find answers, a sonogram was done late Friday night to look at the veins in his arms, neck and shoulders. We received news on Saturday that there was a small blot clot in a vein on the left side. Fortunately this clot is in the veinous system, not the arterial system, so it does not pose a threat of moving into his brain. Doctors didn't feel the need to remove with surgery and the clot will be treated with blood thinners.
The physical therapy team noticed more improvement in Karl's leg strength and his ability to balance when sitting in a chair or edge of a bed. This makes moving from bed less strenuous and therefore giving Karl more opportunities to not be lying down. He is also getting closer to standing on his own. Arm therapy was limited due to the swelling and clot. The PT team that has been working with Karl during his (2) stays at Memorial is phenomenal. They have been gentle yet thorough and given Karl much encouragement. He has expressed his gratitude towards this team time and time again- it's really nice to these people feel appreciated and then hear them say this is why they do what they do.
The PICC line (aka peripherally inserted central catheter,) which is a long, slender, flexible tube that is inserted into a vein in the upper arm, was remove Saturday night. This line had been in place since the 1st surgery and served as a more direct IV connection to heart for medication, sedation, drawing blood and any other emergency needs. It was not being used daily (like it was in the past,) and they wanted to get rid of anything that might interfere with dissolving of the clot. With this gone, we now have one less thing in the way of Karl's comfort!
Overall, Karl seems to be a bit more himself. He is ready to get OUT of the hospital and work on being able to do things on his own. The healthier his mind becomes, the more frustrating his physical condition will be. But our guy has the right attitude and a lot to work hard for.
Our hopes are to see less swelling tomorrow and get word on moving to rehab....
Karl has been battling edema the past day or so- especially in the left hand/arm. To try and find answers, a sonogram was done late Friday night to look at the veins in his arms, neck and shoulders. We received news on Saturday that there was a small blot clot in a vein on the left side. Fortunately this clot is in the veinous system, not the arterial system, so it does not pose a threat of moving into his brain. Doctors didn't feel the need to remove with surgery and the clot will be treated with blood thinners.
The physical therapy team noticed more improvement in Karl's leg strength and his ability to balance when sitting in a chair or edge of a bed. This makes moving from bed less strenuous and therefore giving Karl more opportunities to not be lying down. He is also getting closer to standing on his own. Arm therapy was limited due to the swelling and clot. The PT team that has been working with Karl during his (2) stays at Memorial is phenomenal. They have been gentle yet thorough and given Karl much encouragement. He has expressed his gratitude towards this team time and time again- it's really nice to these people feel appreciated and then hear them say this is why they do what they do.
The PICC line (aka peripherally inserted central catheter,) which is a long, slender, flexible tube that is inserted into a vein in the upper arm, was remove Saturday night. This line had been in place since the 1st surgery and served as a more direct IV connection to heart for medication, sedation, drawing blood and any other emergency needs. It was not being used daily (like it was in the past,) and they wanted to get rid of anything that might interfere with dissolving of the clot. With this gone, we now have one less thing in the way of Karl's comfort!
Overall, Karl seems to be a bit more himself. He is ready to get OUT of the hospital and work on being able to do things on his own. The healthier his mind becomes, the more frustrating his physical condition will be. But our guy has the right attitude and a lot to work hard for.
Our hopes are to see less swelling tomorrow and get word on moving to rehab....
Friday, June 21, 2013
June 20: A Positive Day
Karl was moved to "ICU lite" where he is not as strictly monitored as the normal ICU. A good step in the right direction. Our guy is the mend this week- and has had some really great days. His comfort level has increased immensely since getting the fluid out of his chest and overall he just feels better.
Karl has been able to take phone calls from him family and sounds nice and clear on a cell phone. His voice is much stronger than before. Physical therapy is also progressing. Stronger each day and working hard at it. PT wears Karl out but he does give it his all.
Karl is having back pains from sitting in bed and recliners all day, so we are working hard to get him walking. He is currently able to stand with some assistance. It's apparent that Karl wants to get out of the hospital and work on his recovery at home.
Appetite wise, Karl is ready for that steak. He's eating better and drinking well. Slow and steady at this point. We don't want to rush the process, but finally we have something to be happy about!
Hoping to be back in rehab soon!
Tuesday, June 18, 2013
June 18: Waking Up Well
We have a mini-victory to celebrate today. We got the breathing tube out!
Karl was taken off sedation this morning and did not get as agitated with the tube. The respiratory therapist turned off the oxygen coming from the vent once Karl was getting enough on his own, and out it came! Karl was able to speak softly and started to communicate again. This is SUCH great news!!!
Karl is still weak as he hasn't eaten any real food in days, but he's hungry and ready for some grub! There will be tests done once again by the speech therapist before he can have solid foods.
We hope the transition out of ICU will be a quicker process this time since Karl is much stronger- physically and mentally.
Tomorrow might be a day to move Karl to a chair if he is up to it. We want to get his body moving so he doesn't loose more time or strength lying in bed. There is still a long road ahead, but getting to this point is a big deal after what happened this weekend. Today, we get to smile.
Karl was taken off sedation this morning and did not get as agitated with the tube. The respiratory therapist turned off the oxygen coming from the vent once Karl was getting enough on his own, and out it came! Karl was able to speak softly and started to communicate again. This is SUCH great news!!!
Karl is still weak as he hasn't eaten any real food in days, but he's hungry and ready for some grub! There will be tests done once again by the speech therapist before he can have solid foods.
We hope the transition out of ICU will be a quicker process this time since Karl is much stronger- physically and mentally.
Tomorrow might be a day to move Karl to a chair if he is up to it. We want to get his body moving so he doesn't loose more time or strength lying in bed. There is still a long road ahead, but getting to this point is a big deal after what happened this weekend. Today, we get to smile.
Monday, June 17, 2013
June 17: A Day of Rest
Monday was a quiet day for Karl. He was once again in recovery mode. His body was coming down from the shock of another serious procedure and the ICU doctors wanted to be very conservative. They decided to wait a bit longer before taking the tube out and had goals to get Karl's oxygen levels higher. There was not doubt that he could breath on his own, but they wanted to make sure he could get enough oxygen to the body.
Karl was sedated most of the day so he wouldn't get agitated by the breathing tube, occasionally coming off sedation to check responses. The good news was that his oxygen levels were improving.
We received an update around 9pm from Dad's nurse that he was still doing pretty well and they were hopefully for a good day Tuesday. Rest well Karl!
Karl was sedated most of the day so he wouldn't get agitated by the breathing tube, occasionally coming off sedation to check responses. The good news was that his oxygen levels were improving.
We received an update around 9pm from Dad's nurse that he was still doing pretty well and they were hopefully for a good day Tuesday. Rest well Karl!
Sunday, June 16, 2013
June 16: Surgery #2, A Father's Day To Remember
With only a few shorts hours of sleep, we got back to the hospital to be at Karl's side. He was pretty much in the same condition as the night before, still on the BiPAP breathing machine.
The team of doctors had met, reviewed Karl's scans and decided they needed to take action. Fluid had built up in the lining of his heart and lungs, causing cardiac tamponade (or pericardial tamponade.) This is an acute type of pericardial effusion in which fluid accumulates in the pericardium (the sac in which the heart is enclosed.) This pressure was effecting his breathing and heart-rate and needed to be addressed immediately.
Karl was hurried off to the OR. We couldn't believe what was happening- felt like we were back at square one all over again. Three weeks ago today, we all sat in that same dreadful waiting room hoping and praying for the surgeons to be precise and knowledgable.
We left his side at the OR doors at 9:15am. Two hours of waiting. This is the worst part. Doctor Cortelli came out at 11:30am and I think our hearts stopped. Then we saw him smile. He told us everything had gone ok and we, again, cried tears of joy and relief. Even as his own daughter was calling to wish him a Happy Father's Day, Dr. Cortelli took a good deal of time to explain how the procedure unfolded, and answer our questions. Below is my best attempt to explain what happened and how it was resolved...
During the first surgery, Karl's breast bone was wired shut so it could eventually heal and fuse back together. Somehow, this wiring was fractured and had loosened up, causing the wires to cut into his tissue, and the bone plates to move around. This could have occurred due to vigorous coughing early on or even overly agressive PT in rehab. We are still getting to the bottom of the cause. Since Karl was on the blood thinner Coumadin, any cuts could cause extensive bleeding- hence the blood build-up by his heart. This blood was building up in a small space between his heart and lungs and his breast plate, and was so intense that we did see reddening of the outer skin. When the doctors went in to drain the fluid, we were told it poured out and his heart rate changed immediately. Over 2 liters of fluid. No wonder he was in so much pain and no wonder his lungs were struggling to get air. It all made sense. The team drained the chest fluid, along with a small amount of fluid in his right lung, then as a last minute decision, rewired the breast bone more extensively. They saw his bone was heathy and strong and wanted to get it corrected.
Having made it through another serious procedure, Karl was taken back up to his same room in the cardiac ICU. He was once again on the respirator with a tender chest wound, only this time the surgery did not cause any strokes so the waking up process should be less complicated. Once the anesthesia and sedation started to wear off, Karl could immediately respond to basic commands such as wiggle toes and squeeze hands. He was very loopy but did manage to give acknowledgments with his head and eyes. The vent caused Karl to get agitated so they decided to sedate him most of the evening to let him rest. The goal is to extubate in the morning.
Despite the events of today, we are grateful that we can say Dad is still with us- and we are now moving towards celebrating Father's Day with him in 2014.
We love you Dad!
The team of doctors had met, reviewed Karl's scans and decided they needed to take action. Fluid had built up in the lining of his heart and lungs, causing cardiac tamponade (or pericardial tamponade.) This is an acute type of pericardial effusion in which fluid accumulates in the pericardium (the sac in which the heart is enclosed.) This pressure was effecting his breathing and heart-rate and needed to be addressed immediately.
Karl was hurried off to the OR. We couldn't believe what was happening- felt like we were back at square one all over again. Three weeks ago today, we all sat in that same dreadful waiting room hoping and praying for the surgeons to be precise and knowledgable.
We left his side at the OR doors at 9:15am. Two hours of waiting. This is the worst part. Doctor Cortelli came out at 11:30am and I think our hearts stopped. Then we saw him smile. He told us everything had gone ok and we, again, cried tears of joy and relief. Even as his own daughter was calling to wish him a Happy Father's Day, Dr. Cortelli took a good deal of time to explain how the procedure unfolded, and answer our questions. Below is my best attempt to explain what happened and how it was resolved...
During the first surgery, Karl's breast bone was wired shut so it could eventually heal and fuse back together. Somehow, this wiring was fractured and had loosened up, causing the wires to cut into his tissue, and the bone plates to move around. This could have occurred due to vigorous coughing early on or even overly agressive PT in rehab. We are still getting to the bottom of the cause. Since Karl was on the blood thinner Coumadin, any cuts could cause extensive bleeding- hence the blood build-up by his heart. This blood was building up in a small space between his heart and lungs and his breast plate, and was so intense that we did see reddening of the outer skin. When the doctors went in to drain the fluid, we were told it poured out and his heart rate changed immediately. Over 2 liters of fluid. No wonder he was in so much pain and no wonder his lungs were struggling to get air. It all made sense. The team drained the chest fluid, along with a small amount of fluid in his right lung, then as a last minute decision, rewired the breast bone more extensively. They saw his bone was heathy and strong and wanted to get it corrected.
Having made it through another serious procedure, Karl was taken back up to his same room in the cardiac ICU. He was once again on the respirator with a tender chest wound, only this time the surgery did not cause any strokes so the waking up process should be less complicated. Once the anesthesia and sedation started to wear off, Karl could immediately respond to basic commands such as wiggle toes and squeeze hands. He was very loopy but did manage to give acknowledgments with his head and eyes. The vent caused Karl to get agitated so they decided to sedate him most of the evening to let him rest. The goal is to extubate in the morning.
Despite the events of today, we are grateful that we can say Dad is still with us- and we are now moving towards celebrating Father's Day with him in 2014.
We love you Dad!
June 15: Catch Your Breath
Saturday was scary.
The morning started off slow with Karl not very interested in eating breakfast. He only wanted fruit as it was moist and easy to swallow. Karl was quite uncomfortable sitting upright in his bed so we tried to reposition him for awhile. Every movement was painful and caused him to become short of breath. This labored breathing continued throughout the day, with intermitten "panic attacks" where Karl was feeling unable to catch him breath. We worked all day, for hours and hours, calming him down and talking him through these attacks, while helping him to find a position that was not painful. Karl would doze in and out, from pure exhaustion, but could hardly sleep do to fear of not breathing. We tried to feed him a late lunch but even then, hungry and in need of nutrition, he couldn't catch his breath enough to swallow much food. He drank one boost drink, about a cup of liquid. Around 5pm the breathing got significantly worse. It was to a point that was very scary, and not something he could be talked through. Fluids and anti-anxiety medications were not helping. Karl was becoming very pale and was clearly in lots of pain. Something needed to be done.
Not having the capability to help him on the rehab floor, Karl was admitted to the Emergency Room at Memorial South Hospital, just 3 floors down. He was put on the BiPAP machine, which is a breathing mask that provides continuous positive airway pressure. It's noisy and can be a little scary to wear, but it did the trick and brought Karl's oxygen levels to where they should be. However, the mask only added to his panic attacks and fear. Nothing seemed to be going in the right direction for our guy.
After being evaluated by the ER doctor, it was decided that Karl would be transported back to the Memorial Regional Hospital ICU. This is where he could receive the best care. We made the trip back over and waited in the next ER until an ICU bed was available for Karl. He was finally settled into the Nero, Surgical & Trama ICU on the 2nd floor around midnight. Dad was in rough shape, needing to be calmed down time after time. Not being able to do anything to help was awful, but we knew the team would figure it out and fix this. They performed a sonogram on his lungs, heart and abdomen to understand more about what was going on inside.
The night's goal was to keep Dad's oxygen levels up and review the tests with the doctors first thing in the morning. Hoping for an answer soon!!!!
The morning started off slow with Karl not very interested in eating breakfast. He only wanted fruit as it was moist and easy to swallow. Karl was quite uncomfortable sitting upright in his bed so we tried to reposition him for awhile. Every movement was painful and caused him to become short of breath. This labored breathing continued throughout the day, with intermitten "panic attacks" where Karl was feeling unable to catch him breath. We worked all day, for hours and hours, calming him down and talking him through these attacks, while helping him to find a position that was not painful. Karl would doze in and out, from pure exhaustion, but could hardly sleep do to fear of not breathing. We tried to feed him a late lunch but even then, hungry and in need of nutrition, he couldn't catch his breath enough to swallow much food. He drank one boost drink, about a cup of liquid. Around 5pm the breathing got significantly worse. It was to a point that was very scary, and not something he could be talked through. Fluids and anti-anxiety medications were not helping. Karl was becoming very pale and was clearly in lots of pain. Something needed to be done.
Not having the capability to help him on the rehab floor, Karl was admitted to the Emergency Room at Memorial South Hospital, just 3 floors down. He was put on the BiPAP machine, which is a breathing mask that provides continuous positive airway pressure. It's noisy and can be a little scary to wear, but it did the trick and brought Karl's oxygen levels to where they should be. However, the mask only added to his panic attacks and fear. Nothing seemed to be going in the right direction for our guy.
After being evaluated by the ER doctor, it was decided that Karl would be transported back to the Memorial Regional Hospital ICU. This is where he could receive the best care. We made the trip back over and waited in the next ER until an ICU bed was available for Karl. He was finally settled into the Nero, Surgical & Trama ICU on the 2nd floor around midnight. Dad was in rough shape, needing to be calmed down time after time. Not being able to do anything to help was awful, but we knew the team would figure it out and fix this. They performed a sonogram on his lungs, heart and abdomen to understand more about what was going on inside.
The night's goal was to keep Dad's oxygen levels up and review the tests with the doctors first thing in the morning. Hoping for an answer soon!!!!
Thursday, June 13, 2013
Rehab Challenges
June 13.
Karl has been in rehab for 5 days now. It was not the easiest transition as the first few days were spent battling weakness, anemia and some potential kidney issues. Karl tends to be short of breath often and has still not been eating much. He's very tired and can be disinterested in activity. The realization of his condition is probably beginning to sink in and would undoubtedly cause Karl to worry about his future and his family. He had always been the one to take care of everybody- so now it's his family's turn to take care of him. We reassure him daily that everything will be ok and not to worry. He's a trooper and has a strong bunch behind him. Some days are better than others.
We do have a small victory to celebrate today (Thursday.) In Karl's words, "today was a good day." He did well in physical therapy- was able to stand for a short time using only some assistance and worked hard on his arms.
There is a possible chance of fluid build-up, so ultrasounds were done on his heart and lungs this afternoon. This wore him out and the evening was quiet.
Doctors will meet with the family on Friday to discuss Karl's condition, report on progress and answer questions. Should have more information in the next 2 days.
Thank you to everyone for following along and keeping dear Karl in your prayers, and for sending healthy and positive vibes his way. Today I discovered this blog has received over 1700 page views. What an astonishing number of people showing concern and love over the past 2+ weeks! When Karl is better, he will enjoy looking back and reading about the journey he's on, and how far he has come.
Karl has been in rehab for 5 days now. It was not the easiest transition as the first few days were spent battling weakness, anemia and some potential kidney issues. Karl tends to be short of breath often and has still not been eating much. He's very tired and can be disinterested in activity. The realization of his condition is probably beginning to sink in and would undoubtedly cause Karl to worry about his future and his family. He had always been the one to take care of everybody- so now it's his family's turn to take care of him. We reassure him daily that everything will be ok and not to worry. He's a trooper and has a strong bunch behind him. Some days are better than others.
We do have a small victory to celebrate today (Thursday.) In Karl's words, "today was a good day." He did well in physical therapy- was able to stand for a short time using only some assistance and worked hard on his arms.
There is a possible chance of fluid build-up, so ultrasounds were done on his heart and lungs this afternoon. This wore him out and the evening was quiet.
Doctors will meet with the family on Friday to discuss Karl's condition, report on progress and answer questions. Should have more information in the next 2 days.
Thank you to everyone for following along and keeping dear Karl in your prayers, and for sending healthy and positive vibes his way. Today I discovered this blog has received over 1700 page views. What an astonishing number of people showing concern and love over the past 2+ weeks! When Karl is better, he will enjoy looking back and reading about the journey he's on, and how far he has come.
Monday, June 10, 2013
Rehab Ups and Downs
Karl was taken to the Memorial Rehab location around 5pm on Sunday, June 9th. He spent the day very tired and not eager to do much physical activity. Aside from another restless night, Karl was found to be anemic and was given Reglan for 3 days to increase the level of red blood cells in his body. He did not have much of an appetite and very low energy. But at least he was out of the hospital and now in a location to help him work towards getting better.
Monday was another rough day for Karl. The doctors decided a blood transfusion would be best to help with his anemia. This took 4 hours. He still received visits from PT and OT today- although they were not able to get too vigorous as Karl is still very weak. Not interested in eating very much again today. Trying to rest and regain his strength- will hopefully be strong enough to get out of bed tomorrow.
Monday was another rough day for Karl. The doctors decided a blood transfusion would be best to help with his anemia. This took 4 hours. He still received visits from PT and OT today- although they were not able to get too vigorous as Karl is still very weak. Not interested in eating very much again today. Trying to rest and regain his strength- will hopefully be strong enough to get out of bed tomorrow.
Saturday, June 8, 2013
June 7 & 8: Important Step #2
Karl continues to be on the up and up! This weekend brought more improvements for our guy.
Sophia and Chris came for a visit on Friday to bring Grandfather balloons and pudding- Karl was so happy to see their little smiling face. The kids visited for about 35 minutes, sang some songs bedside and were intrigued by all the medical gadgets. This was a very bright day for Karl- those grandchildren mean the world to him, and seeing them brought much joy. Another motivation to work hard and get home to his family.
With a long road ahead on the path to physical recovery, Karl recognized how instrumental his physical therapists would be. He made a point to thank his team, tell them how much he appreciated all their help and let them know that their work would be key to getting him back to where he needed and wanted to be. His sentiments towards these hard working individuals was more than appreciated. The lead physical therapist took Karl's words to heart and told him that patients like him were the reason he did this job. Knowing he made a difference in someones life was all he wanted.
Eating continues to improved each day. Karl received a vist from the catering staff and was able to select his menu for lunch and dinner. He's now able to eat more solid foods and even gets a cup of [decaf] coffee everyday!! (his favorite!)
After weeks in the hospital, Karl was beginning to look a bit like a pirate. Although Katie thought his mustache and beard were pretty cool, he was ready for a shave. Karl is on a blood thinning medicine called Coumadun (anticoagulant) that can cause extreme bleeding, so normal razors are not allowed. Amelia and Katie took the evening to use an electric razor and shave Karl's face. He was so happy to have smooth skin, and looked even more like the handsom man we all know and love.
On Saturday, we learned that Karl was officially cleared for rehab! No more Memorial Cardiac floor was needed!!! This was FANTASTIC news!! Now we wait to see when a room becomes available at Memorial Regional South. This Rehab facility is closer to the house and is well-known as a wonderful facility. Elsie did some rehab at this located and made great progress. Penny is thrilled this will be the next move.
We are hoping the next day or 2 brings news of Karl's transfer to the rehab facility. The facility's private room with give him a sense of normality and allow for a full day dedicated to strengthening his body and mind. This is just what we were waiting for!
Sophia and Chris came for a visit on Friday to bring Grandfather balloons and pudding- Karl was so happy to see their little smiling face. The kids visited for about 35 minutes, sang some songs bedside and were intrigued by all the medical gadgets. This was a very bright day for Karl- those grandchildren mean the world to him, and seeing them brought much joy. Another motivation to work hard and get home to his family.
With a long road ahead on the path to physical recovery, Karl recognized how instrumental his physical therapists would be. He made a point to thank his team, tell them how much he appreciated all their help and let them know that their work would be key to getting him back to where he needed and wanted to be. His sentiments towards these hard working individuals was more than appreciated. The lead physical therapist took Karl's words to heart and told him that patients like him were the reason he did this job. Knowing he made a difference in someones life was all he wanted.
Eating continues to improved each day. Karl received a vist from the catering staff and was able to select his menu for lunch and dinner. He's now able to eat more solid foods and even gets a cup of [decaf] coffee everyday!! (his favorite!)
After weeks in the hospital, Karl was beginning to look a bit like a pirate. Although Katie thought his mustache and beard were pretty cool, he was ready for a shave. Karl is on a blood thinning medicine called Coumadun (anticoagulant) that can cause extreme bleeding, so normal razors are not allowed. Amelia and Katie took the evening to use an electric razor and shave Karl's face. He was so happy to have smooth skin, and looked even more like the handsom man we all know and love.
On Saturday, we learned that Karl was officially cleared for rehab! No more Memorial Cardiac floor was needed!!! This was FANTASTIC news!! Now we wait to see when a room becomes available at Memorial Regional South. This Rehab facility is closer to the house and is well-known as a wonderful facility. Elsie did some rehab at this located and made great progress. Penny is thrilled this will be the next move.
We are hoping the next day or 2 brings news of Karl's transfer to the rehab facility. The facility's private room with give him a sense of normality and allow for a full day dedicated to strengthening his body and mind. This is just what we were waiting for!
Thursday, June 6, 2013
June 5 & 6: A Good Night's Sleep
That is just what Karl needed. Rest. And lots of it.
The past 11 days have been taxing on Karl's body, mind and spirit, and it really took everything out of him. It wasn't until recently that Karl was able to get 2 long, uninterrupted nights of sleep- and he seemed to be a new man. The energy level was the best we've seen, his throat has had more time to heal, allowing for soft-solid foods, he can now drink all liquids and has a much stronger voice. Karl is able to carry on short conversations and has been cracking jokes all day. He makes a point to express his gratitude towards all his caretakers and knows what it took to get him this far.
PT is gearing up to work Karl hard each day. He has been able to stand for a short time each day, with the therapist's support. Still working on leg/arm strength and finger movement, but making progress each day. We are all so proud of him.
Penny and Katie attended a class on Wednesday about how to bring home and care for a heart surgery patient. Lots of lifestyle changes but all are for the best. Karl should be strong enough to attend this class Friday and Katie will attend again with him.
The doctors and therapists are talking about moving Karl to a rehab facility next week, if not sooner. This is the next big step we have been waiting for.
Looking back, we couldn't be more thankful for where we are today. Keep up the great work, Karl!
The past 11 days have been taxing on Karl's body, mind and spirit, and it really took everything out of him. It wasn't until recently that Karl was able to get 2 long, uninterrupted nights of sleep- and he seemed to be a new man. The energy level was the best we've seen, his throat has had more time to heal, allowing for soft-solid foods, he can now drink all liquids and has a much stronger voice. Karl is able to carry on short conversations and has been cracking jokes all day. He makes a point to express his gratitude towards all his caretakers and knows what it took to get him this far.
PT is gearing up to work Karl hard each day. He has been able to stand for a short time each day, with the therapist's support. Still working on leg/arm strength and finger movement, but making progress each day. We are all so proud of him.
Penny and Katie attended a class on Wednesday about how to bring home and care for a heart surgery patient. Lots of lifestyle changes but all are for the best. Karl should be strong enough to attend this class Friday and Katie will attend again with him.
The doctors and therapists are talking about moving Karl to a rehab facility next week, if not sooner. This is the next big step we have been waiting for.
Looking back, we couldn't be more thankful for where we are today. Keep up the great work, Karl!
Tuesday, June 4, 2013
June 4: Let's Get Move'n...
We were able to see Karl make some advancements today. He began physical therapy and finally got moved from his bed to a chair. This was a great first step for not only his physical state, but his morale as well. Karl also worked with an occupational therapist on hand dexterity and the speech therapist on eating and drinking. He ate better today and wanted to move more and more. All great signs and promising steps to recovery....
Although the days seem incredibly positive, evenings are the hardest. After a long day of exerting energy, Karl tends to get agitated and uncomfortable after 5pm. His heart and body are still healing so too much activity takes a toll. We try and let him rest around 6/7pm.
Through all the distress, fear, uncertainty, pain and anger Karl must be feeling- he still manages to win over the hospital staff. His maners and courtesy are apparent to everyone and his witty sense of humor has brought laughter and smiles to many of his caretakers Nurses that were not assigned to him today kept coming in to see how he was doing and help when needed.
Karl's charm and has not been lost. He is still the loving, kind and strong man we all love to dearly, and remains a guy that everyone likes and remembers. That's our Karl for sure!
Although the days seem incredibly positive, evenings are the hardest. After a long day of exerting energy, Karl tends to get agitated and uncomfortable after 5pm. His heart and body are still healing so too much activity takes a toll. We try and let him rest around 6/7pm.
Through all the distress, fear, uncertainty, pain and anger Karl must be feeling- he still manages to win over the hospital staff. His maners and courtesy are apparent to everyone and his witty sense of humor has brought laughter and smiles to many of his caretakers Nurses that were not assigned to him today kept coming in to see how he was doing and help when needed.
Karl's charm and has not been lost. He is still the loving, kind and strong man we all love to dearly, and remains a guy that everyone likes and remembers. That's our Karl for sure!
Monday, June 3, 2013
June 3: Small Improvements each day...
Another day has passed and Karl has gotten that much closer to being out of the Cardiac ICU. Vitals are mostly stable and his care has turned from monitoring immediate danger to planning what will come next to aid in his recovery. We visit Karl daily and make ourselves available to help with whatever he needs. Our focus is helping him feel as comfortable as possible and keep encouraging his small vistories. Day by day....
Despite feeling the discomfort of being in a bed for a week, Karl has managed to keep his spirits up and even show us his sense of humor. He is aware of everything that has happened to him and understands what lies ahead. We are anxiously awaiting his move to the non-intensive cardiac floor.
Despite feeling the discomfort of being in a bed for a week, Karl has managed to keep his spirits up and even show us his sense of humor. He is aware of everything that has happened to him and understands what lies ahead. We are anxiously awaiting his move to the non-intensive cardiac floor.
Sunday, June 2, 2013
Day #7: One week ago...
6/2
It's amazing 7 days have gone by. They seemed to drag on forever. It was just one week ago that Karl was having his Sunday morning coffe at home with his wife and then being rushed to the ER. Now here we are....
To say we are lucky is an understatement. It's a miracle we have our sweet Karl with us today, and we have to thank the amazing doctors, surgeons, nurses and other caregivers at Memorial Hospital. To Karl's family, these people are heroes and heroines. True lifesavers.
Sunday was the best day yet- Karl's voice is getting stronger and he is able to say many words at a time. He is still only eating small amounts of pureed foods and ice chips are allowed in small amounts- but he is not ready for liquids.
We are still only seeing minimum movement in Karl's arms and limbs, and limited movement on one side. He is still not tracking or making eye contact. We knew he can see but it appears he's not able to focus. We are unsure if this is temporary. Time will tell.
Karl said hello to his sister Amy on the phone, then listened to a video of his grandkids singing him a song and said "wow.." He was surrounded by family all day and received lots of love and encouragement. We will continue to give Karl everything he needs and be patient as we learn what lies ahead...
It's amazing 7 days have gone by. They seemed to drag on forever. It was just one week ago that Karl was having his Sunday morning coffe at home with his wife and then being rushed to the ER. Now here we are....
To say we are lucky is an understatement. It's a miracle we have our sweet Karl with us today, and we have to thank the amazing doctors, surgeons, nurses and other caregivers at Memorial Hospital. To Karl's family, these people are heroes and heroines. True lifesavers.
Sunday was the best day yet- Karl's voice is getting stronger and he is able to say many words at a time. He is still only eating small amounts of pureed foods and ice chips are allowed in small amounts- but he is not ready for liquids.
We are still only seeing minimum movement in Karl's arms and limbs, and limited movement on one side. He is still not tracking or making eye contact. We knew he can see but it appears he's not able to focus. We are unsure if this is temporary. Time will tell.
Karl said hello to his sister Amy on the phone, then listened to a video of his grandkids singing him a song and said "wow.." He was surrounded by family all day and received lots of love and encouragement. We will continue to give Karl everything he needs and be patient as we learn what lies ahead...
Day #6: Important Step
6/1 Saturday was a big day.
We walked into Karl's room bright and early to see him free of a ventilator and feeding tube!! What a sight!! That is the handsome man we know! The doctor had taken the tubes out very early in the morning after breathing tests confirmed his lungs were strong enough.
This was huge. That thing needed to come out in order for Karl to make any advances in his recovery. Not to mention how uncomfortable it was for him. We are all so relieved!
Karl was able to softly speak a few words and he told us he "was a trooper." Boy or boy is he ever! SUCH a trooper.
Because a week on the ventilator causes swelling on the throat, Karl was not able to have liquids yet. He was given some ice chips from time to time and received a visit from the speech therapist. He ate some applesauce and was very happy to have some real food. He is still very sore and is only able to make small movements.
There was a lot of stimulation and exertion today and the evening ended with Karl going into an irregular heartbeat. The nurse thought it was due to an irritable heart- his sure has been through a lot! This became more regular as the night went on, but it was a reminder of how fragile and weak Karl's body still is.
We came home to chicken soup made by a dear friend who loves Karl to pieces. It was just what we needed after a long day. We celebrated a small victory for our Karl and knew he was going to fight hard to get back to us.
We have taken a step in the right direction, although there are still many obstacles to overcome. For now, we are enjoying the ability to tell Karl we love him and know that he can hear.
We walked into Karl's room bright and early to see him free of a ventilator and feeding tube!! What a sight!! That is the handsome man we know! The doctor had taken the tubes out very early in the morning after breathing tests confirmed his lungs were strong enough.
This was huge. That thing needed to come out in order for Karl to make any advances in his recovery. Not to mention how uncomfortable it was for him. We are all so relieved!
Karl was able to softly speak a few words and he told us he "was a trooper." Boy or boy is he ever! SUCH a trooper.
Because a week on the ventilator causes swelling on the throat, Karl was not able to have liquids yet. He was given some ice chips from time to time and received a visit from the speech therapist. He ate some applesauce and was very happy to have some real food. He is still very sore and is only able to make small movements.
There was a lot of stimulation and exertion today and the evening ended with Karl going into an irregular heartbeat. The nurse thought it was due to an irritable heart- his sure has been through a lot! This became more regular as the night went on, but it was a reminder of how fragile and weak Karl's body still is.
We came home to chicken soup made by a dear friend who loves Karl to pieces. It was just what we needed after a long day. We celebrated a small victory for our Karl and knew he was going to fight hard to get back to us.
We have taken a step in the right direction, although there are still many obstacles to overcome. For now, we are enjoying the ability to tell Karl we love him and know that he can hear.
Day #4 & #5: New discoveries
Thursday, 5/30:
Dad was taken off Diprivan (sedation) early in the morning and was doing well during his first real chance to"wake-up." His vitals were improving and his oxygen levels were getting close to where they need to be. They removed some tubes still left from surgery and Karl was becoming more responsive to commands (blink, move feet etc.) He still wasn't making eye contact or tracking, and was still on the breathing tube.
The doctor ordered a brain CT scan, which showed several little "spots" that they thought might indicate mini-strokes. Not ideal results.
We did have one special moment with Karl late Thursday that touched our hearts. He was able to weakly mouth the words "I love you." Wow. We then knew he was aware his family was with him and that we did have some relatively good brain activity. We have HOPE.
Friday, 5/31:
Karl's neurologist confirmed there were in fact several strokes that occurred during the surgery. The deep hypothermic state (during his surgery) can loosen up any debris within the blood stream/aorta and was probably the cause. These strokes were small and sprinkled throughout the brain. It's still too early to know if they have caused any permanent cognitive effects and/or what areas are effected. The good side is they were not all in one location- this would have undoubtedly caused damage.
An EEG was also performed to detect any abnormal brain activity or seizures. That came back clear (!)
Karl became more aware of his surroundings and was able to communicate a little. He still had the breathing and feeding tubes and was not very comfortable with either of these. He did try to mouth out some words and pucker his lips when we kisses his cheek. Doctors were talking about trying to remove his vent on Monday if he was strong enough.
At this point, the waiting game was back on. Still cheering for our Karl.
Dad was taken off Diprivan (sedation) early in the morning and was doing well during his first real chance to"wake-up." His vitals were improving and his oxygen levels were getting close to where they need to be. They removed some tubes still left from surgery and Karl was becoming more responsive to commands (blink, move feet etc.) He still wasn't making eye contact or tracking, and was still on the breathing tube.
The doctor ordered a brain CT scan, which showed several little "spots" that they thought might indicate mini-strokes. Not ideal results.
We did have one special moment with Karl late Thursday that touched our hearts. He was able to weakly mouth the words "I love you." Wow. We then knew he was aware his family was with him and that we did have some relatively good brain activity. We have HOPE.
Friday, 5/31:
Karl's neurologist confirmed there were in fact several strokes that occurred during the surgery. The deep hypothermic state (during his surgery) can loosen up any debris within the blood stream/aorta and was probably the cause. These strokes were small and sprinkled throughout the brain. It's still too early to know if they have caused any permanent cognitive effects and/or what areas are effected. The good side is they were not all in one location- this would have undoubtedly caused damage.
An EEG was also performed to detect any abnormal brain activity or seizures. That came back clear (!)
Karl became more aware of his surroundings and was able to communicate a little. He still had the breathing and feeding tubes and was not very comfortable with either of these. He did try to mouth out some words and pucker his lips when we kisses his cheek. Doctors were talking about trying to remove his vent on Monday if he was strong enough.
At this point, the waiting game was back on. Still cheering for our Karl.
Saturday, June 1, 2013
Day #3: A day to assess
May 28th: Tuesday was a day to assess.
Karl was beginning the process of waking up. Since being intubated, he was getting very agitated with his breathing tube. This agitation was bring up his blood pressure so he was sedated most of the day.
The doctors were worried about not enough blood getting to one of his kidneys after it was discovered that is creatinine levels were down, so they ordered a renal angiogram. This process took a few hours and we learned the blood flow was actually ok. The concern now is how he is receiving blood flow to his kidney and other organs. The aortic tear caused a false channel (for lack of a better term) where blood has made it's own new path within the aorta walls.
Dad was started on an IV diet for nutrition. He was able to respond to simple commands such as move your toes, but was sedated most of the night. Karl's body went through a lot and he now needs to rest.
Karl was beginning the process of waking up. Since being intubated, he was getting very agitated with his breathing tube. This agitation was bring up his blood pressure so he was sedated most of the day.
The doctors were worried about not enough blood getting to one of his kidneys after it was discovered that is creatinine levels were down, so they ordered a renal angiogram. This process took a few hours and we learned the blood flow was actually ok. The concern now is how he is receiving blood flow to his kidney and other organs. The aortic tear caused a false channel (for lack of a better term) where blood has made it's own new path within the aorta walls.
Dad was started on an IV diet for nutrition. He was able to respond to simple commands such as move your toes, but was sedated most of the night. Karl's body went through a lot and he now needs to rest.
Day #2: Successful Surgery
Day 1 and Day 2 somewhat blend together- Karl went in for surgery around 9:30pm and wasn't brought up to the ICU until almost 3:00am. Penny, Katie, James, Amelia and Jo were anxiously awaiting the surgery report in the waiting room.
Words cannot even begin to describe how relieved and happy our family was when we got news of the successful surgery.
Once Karl was taken to his room in the ICU, he was under sedation and still being warmed back up from the deep hypothermic process. We were not able to be in his room for long but stayed in the waiting area checking with nurse Michelle every few hours. Now we had to wait and see how he would recover...
Words cannot even begin to describe how relieved and happy our family was when we got news of the successful surgery.
Once Karl was taken to his room in the ICU, he was under sedation and still being warmed back up from the deep hypothermic process. We were not able to be in his room for long but stayed in the waiting area checking with nurse Michelle every few hours. Now we had to wait and see how he would recover...
Day #1: How it all started
Below is the story of how it all started...
Sunday morning, May 26th, around 9am Karl complained of chest pain while at home, and and was taken to Memorial Regional Hospital where the doctors found several blood clots in his right leg. Surgery was performed to remove these clots, around noon, and lasted roughly 2 hours.
To rule out any other issues, the doctors did scans of Karl's whole body and found he had an Ascending Aortic Aneurysm {general term for any swelling of the aorta artery to greater than 1.5 times normal, usually representing an underlying weakness in the wall of the aorta at that location}. This diagnosis requires treatment within 24 hours or it is fatal.
By 9:30pm Karl was taken into surgery #2 for a repair of the ascending aortic wall dissection. The repair consists of using a synthetic graft to repair the damaged portion of the artery. This was performed by Dr. Richard Perryman, whom all staff referred to as a hero and one of the best in Florida. We knew Karl was in good hands. Then it was a waiting game. Amelia, Jo, Katie, James and Penny spend 4.5 hours in the waiting room while Karl was in cardiac surgery. Needless to say it was a very trying for us all.
Due to the location of this repair, Dr. Perryman made a incision on the chest plate and down into the aortic region. To slow the blood flow, Karl was put into Deep Hypothermic Circulatory Arrest (DHCA) {a surgical technique that involves cooling the body of the patient and stopping blood circulation. It is used incardiac surgery to allow operation on the aortic arch and in neurosurgery to repair some brain aneurysms.} The procedure requires keeping the patient in a state of hibernation at 12 - 18 degrees Celsius with no breathing, heartbeat, or brain activity for up to one hour. Blood is drained from the body to eliminate blood pressure. Karl was only in DHCA for 23 minutes. The process to slowly warm the body back up can take an hour or more.
Dr. Perryman finally came in with good news of a successful surgery around 2am. We cried tears of joy and hugged one another tight. The doctor felt the procedure went very smoothly, and it did in fact save his life.
Karl was then moved to the Cardiac ICU unit where he is currently being monitored. He is still on a respirator and sedated from time to time. Only limited visits are allowed. There is a nurse with him at all times, making sure his vitals are where they need to be.
We now wait to see how the doctor's would like to proceed. We expect Karl to be in ICU for at least another few days and we will we keep you updated as we move forward.
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